Lori Ann Linn – Author

Parker’s Story: A Boy With Seizures
Non Fiction

Keywords: seizures, epilepsy, disability, syndrome, special needs, VNS,

Age/Grade Focus: 5-10 years No. Of Words: 719

Synopsis: Parker goes to school, and it is just like any other day; but, today he has a seizure right after arriving. Parker has a disability which includes epilepsy, so he is in a classroom with other children with special needs. Parker’s classmates help to make Parker comfortable, and they continue on with their class work because they are used to his seizures. Parker’s teacher, Mrs. Laney, and his mom have a procedure they follow to help Parker, and try to stop the seizure. Mrs. Laney times the seizure, and Parker’s mom uses a magnet to trigger his VNS, a device that’s implanted, to try to stop the seizure before it causes side effects like sleepiness and nausea. Up to this point, the VNS has not stopped his seizures; but, it was recently turned up, and Parker’s mom and teacher are hoping it will do the job this time.

Author Bio: I was born and raised in California where I graduated from California State University Long Beach. I have been an actress my whole life and spent a lot of time performing on the stage. I also went back to school and received my teaching credential and taught 1st-3rd grade for 10 years. 9 years ago I gave birth to my son, Parker. He was born with disabilities, including epilepsy. We have had quite a roller coaster ride learning how to take care of Parker and learning all about his disabilities. This book came to me one day after taking him to school and experiencing another seizure. I have other possible stories in my head that are similar to this one; but, they have different focus’, with topics like therapy, school, doctor’s visits, surgery and more. I have also been working on a novel about all our experiences, both good and bad and it is also somewhat of a how to book for parents with special needs children. I searched high and low looking for some material to help when we were in the thick of things; I assume other parents may also be seeking for some sort of help.

There are no illustrations at this time; I would love to see bright, colorful illustrations that would help to make a serious topic feel not too serious for children.

Editing: After my critique, I did my own editing.


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6 Responses to Lori Ann Linn – Author

  1. Hello Lori. We also care for a child with Mowat-Wilson Syndrome. We have an email support group for MWS with about 100 members now from all parts of the world. Please contact us if you would like more infromation.

  2. Connie Kapko says:

    I would love to send you a few bright, colorful illustrations. I dabble in watercolors.

  3. Lynda says:

    I love to know how you are progressing with your book. I, too, wrote (and illustrated) a book for my son with special needs.

    • Lori Linn says:

      I am looking for a literary agent to represent me. That is great that you are able to write and illustrate. I would think selling your book might be easier, having a whole package. Good luck on your book!

  4. amy says:

    I know what you are feeling. My youngest son was born with Hirschsprungs disease. His pediatrician at the time of birth was a really worried female doctor. When i brought him in for his check up after he was released from NICU at 3 weeks. We started discussing what to do with the fact that he didn’t move nor cry much for anything. He started physical therapy and was diagnosed with low muscle tone. He started rolling over and trying to sit up around nine months, walking at a year and a half, talking at almost 2 yrs old, and he signed for most everything. He had speech therapy and feeding therapy before 2 years old. By the time he was 2 yrs old though I was fighting two battles one for a CAT Scan with a Neurologist who said nothing was wrong with him and I told him there was I just know there is something wrong. Scan showed he is missing the rostrum of the corpus coliseum (never spell it right just know how to say it). Then I was also demanding a test on his immune systems. I started noticing that a little after 2 yrs old we have 3 episodes to where he can’t walk on his left leg and full scans of his body show no problems with him at all. He got feeding tube removed on his 3rd birthday, when I won the battle with the immune test. At 3 years old he finally got his tonsils and adenoids out. He sleepwalks and had severe obstructive sleep apnea. He finally graduated from physical therapy at almost six years old. He didn’t know how to rotate his legs when he walked and we had to use a stroller or leash to keep him with us because he would trip. Laws being what they are now a days I had to fight for the past 3 months because when they turn six yeas old they are no longer allowed in the ESE classes if they are only labeled developmentally delayed. But his delays are not normal delays they are real delays caused by something. We have a genetics doctor who thinks he has mild mowats Wilson syndrome and L1CAM syndrome. The last syndrome would explain the brain, hirschsprungs and the leg issue. The DR says Keeghan has the long face, the mouth, palate and other facial features of the first syndrome. I don’t know I just wish they would figure it out.

    • Lori Linn says:

      Make sure the geneticist does the genetic test for Mowat Wilson to get a clear answer. It sounds like that is what your son has as the characteristics you mentioned and Hirschsprungs is a part for many of our kids. My son doesn’t have Hirschsprungs, but, he has lots of bowel issues. Good luck on getting answers!

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