Category Archives: genetic disorder, author

Hard Times Ahead

As I sit here trying to pick a topic to focus on for a post, all I can think about is the implications of the election this week. As everyone must know by now, 5 pages worth of companies were … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , | Leave a comment

Adventures in Airport Security

This summer on our travels, we had the opportunity to see TSA in action a couple of times. The first time through, going and coming back, went so well we couldn’t believe it. We had heard so many nightmare stories … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, Mowat Wilson Syndrome, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , | 1 Comment

Leaving It In God’s Hands

We had Parker’s video EEG a few weeks ago and I didn’t know what I wanted the results to show. On the one hand, I hoped the EEG would reveal that Parker was having his continuous night seizures so that … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, epilepsy, genetic disorder, author, vagus nerve stimulator (VNS) | Tagged , , , , , , , , | Leave a comment

Making Gains

Lately, Parker has been making such great gains in most areas, speech, PT, OT, scholastically and so on. It is fantastic, but, I find myself waiting for the proverbial other shoe to drop. It is not that I am a … Continue reading

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What A Year!

This has been quite a year for us and I can’t say I will miss 2011. Unfortunately, we have had conflicts with the head of special education in our school district since we came to the district. Simply put, she … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , | Leave a comment

Life After Surgery

As I sit here writing this post, it has been 3 weeks since my mastectomy and I am still having a lot of pain and discomfort. I am ready mentally to get back to life and living, but, my body … Continue reading

Posted in epilepsy, genetic disorder, author, IEP, special needs author | Tagged , , , , , , , , , , , , | 1 Comment

Who Ya Gonna Call?

Recently I discovered a wonderful special needs parent resource. I knew they were out there to offer advice, but, thus far I never really felt the need or that it was the right time to access the service. In our … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome | Tagged , , , , , , , , , , , | 1 Comment