Category Archives: Mowat Wilson Syndrome, disability, special needs

Hard Times Ahead

As I sit here trying to pick a topic to focus on for a post, all I can think about is the implications of the election this week. As everyone must know by now, 5 pages worth of companies were … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , | Leave a comment

Finding Answers

Since my diagnosis of breast cancer, I have been searching my mind for a cause. Of course, I had my surgery remove the cancer, but, I really gave a lot of thought as to whether to have chemotherapy. As I … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , | Leave a comment

What A Year!

This has been quite a year for us and I can’t say I will miss 2011. Unfortunately, we have had conflicts with the head of special education in our school district since we came to the district. Simply put, she … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , | Leave a comment

My “Aha” Moment

As I left our resolution meeting last week, I had a realization that this is probably not going to end well for us. Even if a judge rules in favor of allowing Parker to go to his home school for … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, IEP, Mowat Wilson Syndrome, disability, special needs, special needs author | Tagged , , , , , , , , , , | Leave a comment

Time to Get Serious

I have always had back problems, at least as far back as I can remember. Usually in the past I could baby my back, go see the chiropractor and it would be so much better. Lately, this technique is no … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , | 1 Comment

Money, Money, Money

Sometimes I get so tired of fighting. I know I am fighting for my son, so I keep going; but, it would be so nice to just live and enjoy and not always be in the midst of conflict. I … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , , | Leave a comment

My Book in a Nutshell

I just finished working on a biography of our experiences with Parker and his Mowat Wilson Syndrome. After I finished, I thought I would use this as my next post since it is basically my book in a nutshell. I … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , , | 3 Comments