Category Archives: novel

Our Once In A Lifetime

We just got back from Orlando, Florida and Give Kids the World village. We had an amazing time. They did not leave any stone unturned. Our trip was through Make A Wish and it started out with a limo ride … Continue reading

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Disney Here We Come!

Almost a year ago I requested that Parker get to make a wish for a trip to Disney World through Make a Wish. I had always thought that the organization was for children with fatal diseases; but, I learned recently … Continue reading

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It’s EEG TIme!

We just went to see the Epileptologist and I mentioned the fact that Parker once again was getting his speech going and once again lost it. I explained that this has been a pattern all his life beginning at 5 … Continue reading

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Time Out to Write

I haven’t written in awhile because life has been so busy that I catch myself coming and going. As I sit here writing, I am getting my chelating IV and at last I can put down my thoughts. I am … Continue reading

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It’s That Time Again

Well it is almost that time of year again. It’s Time for the annual IEP meeting, which is an acronym for Individualized Education Program. I like to refer to it as the It’s Extremely Painful meeting. Well, not always. Sometimes … Continue reading

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Church….We Keep Trying

Today, I am a bit frustrated because we were finally going to get back to church and the new aide was a no show. I don’t know what other families do about getting to church, but, for us it has … Continue reading

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Oops, We Spoiled Him

I have been trying to find the right balance of how much spoiling to do versus discipline. It is really hard to know what to do when you have a child with special needs. We do anything and everything to … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs, novel | Tagged , , , , , , , , | Leave a comment