Category Archives: Mowat Wilson Syndrome

Adventures in Airport Security

This summer on our travels, we had the opportunity to see TSA in action a couple of times. The first time through, going and coming back, went so well we couldn’t believe it. We had heard so many nightmare stories … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, Mowat Wilson Syndrome, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , | 1 Comment

Finding Answers

Since my diagnosis of breast cancer, I have been searching my mind for a cause. Of course, I had my surgery remove the cancer, but, I really gave a lot of thought as to whether to have chemotherapy. As I … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , | Leave a comment

What A Year!

This has been quite a year for us and I can’t say I will miss 2011. Unfortunately, we have had conflicts with the head of special education in our school district since we came to the district. Simply put, she … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , | Leave a comment

If It’s Not One Thing

It has been quite some time since my last post and there are various reasons for this. First, we have been having huge troubles with the school district beginning back in May at our annual IEP. We are still doing … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, IEP, Mowat Wilson Syndrome, special needs author | Tagged , , , , , , , , , | 4 Comments

Who Ya Gonna Call?

Recently I discovered a wonderful special needs parent resource. I knew they were out there to offer advice, but, thus far I never really felt the need or that it was the right time to access the service. In our … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome | Tagged , , , , , , , , , , , | 1 Comment

Time to Get Serious

I have always had back problems, at least as far back as I can remember. Usually in the past I could baby my back, go see the chiropractor and it would be so much better. Lately, this technique is no … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs | Tagged , , , , , , , , , , | 1 Comment

My Book in a Nutshell

I just finished working on a biography of our experiences with Parker and his Mowat Wilson Syndrome. After I finished, I thought I would use this as my next post since it is basically my book in a nutshell. I … Continue reading

Posted in Children's book, novel, non-fiction, seizures, epilepsy, VNS, special needs, disability, genetic disorder, author, IEP, Mowat Wilson Syndrome, Mowat Wilson Syndrome, disability, special needs, vagus nerve stimulator (VNS) | Tagged , , , , , , , , , , , , | 3 Comments